The HeartCharged Story

THE HEART IN HEARTCHARGED

Once upon a time we were average high-school girls. Then we were diagnosed with hypertrophic cardiomyopathy (HCM), which is better than not being diagnosed but not as good as not having it. We were extremely athletic and HCM is the #1 killer of student athletes. It is asymptomatic so it most often kills without warning. But we were screened and found out we had it.

We were immediately put on medications and made life-style changes so that our heart rates wouldn’t go up causing our hearts to fibrillate causing us to die. Then the condition got worse and those precautions weren’t deemed enough, so we had defibrillators implanted. The device would shock our hearts if they went out of control. Of course, we still take medications and are careful how we live.

We are so grateful to have found out and be managing our conditions. With that gratitude, we are trying to warn the world. Childhood deaths from undiagnosed heart conditions are preventable. We can end them. But we need people prepared to act in an emergency and our children evaluated to discover these life-threatening conditions.

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THE CHARGE IN HEARTCHARGED

Because I have been given much, I too must give;
Because of thy great bounty Lord, each day I live; (Grace Noll Crowell)

Because we were screened and it saved our lives, we want all children to have the heart screenings they need.

Because we had each other to share the day-to-day dealing with our conditions with, we want others to be able to connect with fellow heartcharged warriors and know patient-to-patient what this life means.

Because we have grown with gratitude, we want to express it so others know it exists.

Because our hearts still quiver, we want others to know we walk on without surety.

Because there are still sorrows in the world, we want people to feel our tears.

Because our souls still find joy, we want others to smile loudly.

GET HEARTCHARGED

Stop preventable deaths. Prepare yourself and your community for a sudden cardiac emergency. Ensure heart conditions are found and treated.

Share patient-to-patient information. Understand and embrace the HeartCharged Warrior life.